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Life with Mia

How Mia Made Her Entrance: Part 1

His disciples asked him, “rabbi, who sinned, this man or his parents, that he was born blind?” “Neither this man nor his parents sinned,” said Jesus, “but this happened so that the work of God might be displayed in his life.” – john 9:2-3

I woke up to a quiet, beautiful Sunday morning and ended the day in a blur of blood, ambulance lights and news that would change the course of our lives forever.

I am not sure why I have chosen now to share this story – maybe I was just not ready to open that door publicly inviting in streams of unwanted advice, ignorance and pity. We had slightly, posting something on social shortly after her diagnosis, but I quickly shut it again realizing it was a bad idea at the time. Being someone who strives for excellence in all I do, I was scared that people would see Mia’s birth as a failure. I know, it’s a pretty selfish thought. I had to come to the realization and ask myself who really defines excellence and success anyways? I think we’ve all seen recently that what matters most is our respect and love for others. Do you know who loves harder and cares more deeply than most?

Those with a little extra color in their lives. 

Our kiddos with Trisomy 21 definitely see the world in colors and pure joy. Their perspective on life is brilliant. Now that Mia is older and we have a better idea of what life is going to be like with her, I am more willing to talk about it. We are so proud of who she is becoming and believe she will have a very successful life.  We pray everyday that God places people in her path to ensure that success and so far he has! Although I am still learning, I do feel I can speak to a lot more than I could four years ago.

I have never written down or shared in writing any of my birth stories although I have thought about it many times. I have had three very different births. If I could take parts of all and put into one, it would be the perfect birth story, but of course, life doesn’t work that way.

September 25, 2016 was a day we will never forget. Yes, I know, who would ever forget the birth of their child?! It just sounds dramatic and that’s what I need to describe the events of this day. I have heard people say when someone experiences trauma our memory processing system malfunctions so that the traumatic memory isn’t remembered correctly or stored incorrectly. We may only remember fragments. I remember quite clearly, however.

I decided not to go to church that morning because I was feeling some tightness, but not enough to have Matt stay home. I never enjoyed being pregnant, but especially with Mia. I started having contractions very early with her and had to get them stopped at least twice in the hospital. I was put on bed rest for six weeks and never knew if “this was the day” even though she was my third pregnancy. As the morning went on, I decided to text Matt about the contractions, called my midwives and family. Dad picked up the older kids and mom and my sister came over. I am very close to my family, but they have never been in the room during the actual birth. This time, Matt and I, for some reason, decided to have both my mom and sister present. Later, we understood why we had this prompting from the Holy Spirit. Everyone was there for a purpose and everyone was definitely needed! With Charlee, it was Matt and the hospital staff. With Levi, it was only Matt and one of our midwives. With Mia, we have three midwives, my mom, my sister and then Matt. Everyone was all hands on deck!

Back to the calmness for a minute. Everything before Mia’s birth was perfect. We called everyone over to the house. We set up the tub on the back porch, running the hose through the window. I rested on the couch outside. It was midday by the time I got outside so the sun was in the perfect spot in our backyard. I wasn’t completely in the sun, but in it just enough to feel the warmth. I remember listening to the wind chimes and birds thinking how perfect that day was to have a baby on the back porch! I had prayed for this. When contractions started becoming stronger, I got in the tub.

I remember clearly explaining each stage of labor to Matt and my midwives. I could tell when I hit transition, I could tell when Mia dropped and I could tell the exact moment before my body started to push. It was beautiful how present I was. I started to push, reached down to grab her and she was out within a couple of pushes.

Then everything changed. Have you ever seen a shark bite on tv? When blood hits water it spreads so as to look 10 times worse then it really is! I pulled Mia up to my chest and in a split second the water turned blood red. One of our midwives grabbed Mia, pressed her hand on her belly button and quickly went into action. I had no idea what was going on. Matt was kneeling next to my ear praying and the three midwives were surrounding Mia on the couch. With my adrenaline rushing, I couldn’t process or make sense of anything going on. I just remember thinking, did I push too hard? Did I pull her out too hard? I couldn’t move, just sitting in the tub with Matt holding me tight.

I will continue in my next post, but decided to stop here for today. Don’t worry, Mia is just fine and living a happy, healthy life.

having said this, he spit on the ground, made some mud with saliva, and put it on the man’s eyes. “go,” he told him, “wash in the Pool of Siloam” (this means sent). So the man went and washed, and came home seeing.- John 9:6-7

 


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Reader Interactions

Comments

  1. Char says

    June 26, 2020 at 3:47 pm

    Very lovingly written. Can’t wait for Part II

  2. Dixie says

    June 26, 2020 at 6:15 pm

    Thank you for sharing y’all’s story…Mia! What a beautiful daughter . . . a beautiful soul.

  3. Tracy says

    June 26, 2020 at 7:31 pm

    Can’t wait for the rest!! She is precious !!

  4. Sue Meewes says

    June 27, 2020 at 7:22 am

    Mia is such a precious gift. I love her spirit!

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sheis__kristina

What a fun game last night 📣🤸🏼‍♀️@mus_athletics #d What a fun game last night 📣🤸🏼‍♀️@mus_athletics
#downsyndromeawareness #mosaicdownsyndrome #inclusion
Did you know that low muscle tone is common in chi Did you know that low muscle tone is common in children with Down syndrome?

One thing I’ve learned through Mia is that Down syndrome doesn’t look the same in every child. ❤️

Mia has Mosaic Down syndrome, which means some of her cells have the typical number of chromosomes and others have an extra copy of chromosome 21. Because of this, some of the characteristics commonly associated with Down syndrome can affect her differently.

For Mia, low muscle tone hasn’t affected her greatly. When you watch her play, climb, run around, or explore, you might not notice it at all. Her everyday movement and muscle tone can look very typical.

Where we do notice it more is with endurance. Mia can tire more easily, and when she’s sick, she tends to use her body less and can lose some of that strength and stamina temporarily.

And then there’s cheerleading. 📣

Cheer is giving Mia opportunities to build strength, balance, coordination, endurance, and confidence—all while doing something she absolutely LOVES.

Sometimes people see a diagnosis and make assumptions about what a child can or can't do.

But Mia keeps reminding us that a diagnosis doesn't tell the whole story.

She is Mia first. And she gets to show us what her Down syndrome looks like. ❤️
#downsyndromeawareness #mosaicdownsyndrome
My girl's first game 🤸🏼‍♀️📣🦋💞 Love her so much. Sh My girl's first game 🤸🏼‍♀️📣🦋💞 Love her so much. She had the best time and thank you to the cheerleaders of @cbhs_memphis what a beautiful thing y'all did tonight for our kiddos! @madonna_learning_center @mptubinis

#downsyndromeawareness #mosaicdownsyndrome #fridaynightlights
Ok friends… we have a SPECIAL announcement! 🎉📣🦋 A Ok friends… we have a SPECIAL announcement! 🎉📣🦋

As a cheerleader growing up, a little part of me always dreamed of having a competitive cheerleader kiddo. And then there was the other part of me that remembered just how exhausting, overwhelming, and EXPENSIVE competitive cheer can be. 😂 It took a toll on my mind, body, and soul!

So when Char decided to choose the ball sports route, I welcomed the change. 🥍⚽️

Then Mia started her new school, and we found out they had a cheer team. And if you know Mia, you know she LOVES to cheer, dance, and sing! 💃🏼📣❤️

Then we found out something BIG…

This is the FIRST year their team has been invited to the National Championships in Orlando! 😭🎉 And we don't know if this opportunity will ever happen again.

Mia's team at @madonna_learning_center is the ONLY regional special needs cheerleading group—and now they are headed to NATIONALS! 🏆✨

And here's the part that feels a little surreal…

I won Nationals in 2001. 🥹 So somehow, all of this is coming full circle.

But this time, I'm getting to experience it in a completely different way. A way where I can cheer, support, celebrate, and ENJOY it in a way I never could have imagined.

And yes… I have it in me to be a CRAZY cheer mom! 😂📣

Don't get me wrong—I will absolutely cheer for my Mia. Loudly. Probably embarrassingly. 😂 But God has shown me that my expectations for Mia are different. They aren't whether she wins. They are about perseverance no matter what. Hard work no matter the outcome.

And most of all…

Love and FUN all the way. ❤️

So here we go, Mia girl.

Mommy is putting her cheer shoes back on. 📣😉

Mia is going to NATIONALS! 🏆🎉

And I couldn't be more proud of her. ❤️ Want to be a part of this journey? You can head over to my Facebook and find multiple ways to help! 

➡️ Link in profile to donate
➡️ Venmo Kristina-Tubinis

#TeamMia #CheerMom #SpecialNeedsCheer #downsyndromeawareness
Y'all I know it's silly because I've never even me Y'all I know it's silly because I've never even met her, but this one hits hard! I'm a huge Dolly Parton fan. She gifted our family hundreds of books, inspired me many times through her songs, connected with me as a girl from Tennessee and proclaimed Jesus from the mountaintops! You will be missed, @dollyparton 💞

"As she sewed, she told a story
From the Bible she had read
About a coat of many colors
Joseph wore and then she said
Perhaps this coat will bring you
Good luck and happiness
And I just couldn't wait to wear it
And momma blessed it with a kiss
...
But they didn't understand it
And I tried to make them see
That one is only poor
Only if they choose to be
Now I know we had no money
But I was rich as I could be
In my coat of many colors
My momma made for me
Made just for me"

#dolly #dollyparton
Sweet Mia wanted to help decorate for the appraisa Sweet Mia wanted to help decorate for the appraisal ☺️🤦🏼‍♀️😘
#downsyndromeawareness #mosaicdownsyndrome
After 3 weeks of cleaning and stressing, I sat dow After 3 weeks of cleaning and stressing, I sat down to admire the view 🤣 don't know the report yet, but my house is cleaner than it's been in years!
Church snuggles are the best ❤️ she pretends to sl Church snuggles are the best ❤️ she pretends to sleep through church (while holding her snacks of course)🤣🤣🥰
His way, His plans 🙏🏼 #christianauthor #book #mom His way, His plans 🙏🏼

#christianauthor #book #mom
The Breaking, The Becoming and The Still Becoming! The Breaking, The Becoming and The Still Becoming!! My book isn't done yet! Walk with me through Part 3 🙌🏼✨ interviews, experiences and new beginnings to encourage us all that life is not over yet! 

Friends, eat, drink and find satisfaction in your hard work because life is short!  - Ecclesiastes 5:18 

This is how my book ends! With embracing the present, enjoying the work we do, accepting our own limitations, and understanding the Sovereignty of God!

#book #christianauthor
Early checkout means sitting with me in the car li Early checkout means sitting with me in the car line while 🥵 🥵 but apparently black sweater in heat index of 111° is cool 😎 
#momlife #boymom
Hard truth 💪🏼 #christianauthor #book #mom Hard truth 💪🏼 

#christianauthor #book #mom
Kinda chic...Mia edition 💕🙏🏼🙌🏼🥰 #downsyndromeaware Kinda chic...Mia edition 💕🙏🏼🙌🏼🥰
#downsyndromeawareness #mosaicdownsyndrome
Amen 🙏🏼 #christianauthor #mom #book Amen 🙏🏼 

#christianauthor #mom #book
I took too long getting ready so she made her own I took too long getting ready so she made her own breakfast 🤣 got to love it! 💕

#downsyndromeawareness #mosaicdownsyndrome #independence
I can do hard things 🙏🏼✨ So can you! #christiana I can do hard things 🙏🏼✨ So can you! 

#christianauthor #book #mom
"The weight became too much. And I started to crac "The weight became too much. And I started to crack.

That is why, sitting on my porch that day, looking at that enormous oak tree, I suddenly understood why I couldn't stop staring at her. I had been admiring her strength. But it wasn't until I looked at her differently—until I stopped simply seeing how tall and magnificent she was and began to notice the deep cracks running throughout her—that I understood. She was strong, but she wasn't without scars. And somehow, God was showing me something deeper.

You can't fake real strength." 

Still, I Walk by Kristina Tubinis
Who did it best? 🤔 #flagpose Here we go! Two kidd Who did it best? 🤔

#flagpose Here we go! Two kiddos tried it! 🤣
Anyone else relate?? ➡️ This chapter was a hard Anyone else relate?? 

➡️ This chapter was a hard one to write, but there is wisdom in calling ourselves out. 

Part 2: The Becoming - will take us through these following truths:
✨ You Can’t Fake Real Strength
✨ You Can’t Disguise Fear as Confidence 
✨ You Can't Ever Give Up 
✨ You Can’t Stop Dreaming

"Because I knew how to endure physical pain. I have tattoos. I've had three babies, two of them at home. I did gymnastics through the first half of my life, and I have plenty of scars to prove it. Sometimes, strangely enough, I even crave pain. I know. Strange. But physical pain made sense to me. I knew how to push through it. Emotional pain was different. It exposed me. It required me to admit that maybe I couldn't do everything myself. And that was a much harder thing for me to accept. It has been incredibly difficult for me to admit that I am a person who struggles with mental illness. Because somewhere along the way, I had convinced myself that strong people didn't need help."

- Still, I Walk by Kristina Tubinis
Have you ever thought to yourself, "Who actually d Have you ever thought to yourself, "Who actually defines success? Who gets to say what success looks like?" 🤔 I know I have. My perception of success was defined by strength, achievements and academic fluency. That all changed with one beautiful girl...

"At the time, I thought Mia was the hardest thing God had ever asked of me. I thought the lessons she brought into our lives were the lessons I was meant to learn. I didn't realize God was still preparing my heart for what was ahead. Because Mia was never just a chapter leading to another chapter. She was a gift all her own. She was the child God used to teach me that hard does not mean bad. That weakness does not mean failure. That surrender is not giving up—it is trusting the One who sees what we cannot.

Through Mia, God began changing the way I saw suffering, strength, and His goodness. And those lessons would become the foundation I would need for what came next. 

Our family was about to grow from five to eight. The road ahead would bring heartbreak, disappointment, stretching, and questions I never imagined asking God. There would be moments when I would wonder how we would keep going. Moments when my faith would be tested in ways I never expected. But before He led us into that valley, He first gave us Mia. The child who would quietly teach us that His strength is made perfect in weakness—and that even when we cannot see what He is doing, He has already gone before us. We were about to discover just how true that really was."

- Still, I Walk by Kristina Tubinis
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