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Life with Mia

How Mia Made Her Entrance: Part 1

His disciples asked him, “rabbi, who sinned, this man or his parents, that he was born blind?” “Neither this man nor his parents sinned,” said Jesus, “but this happened so that the work of God might be displayed in his life.” – john 9:2-3

I woke up to a quiet, beautiful Sunday morning and ended the day in a blur of blood, ambulance lights and news that would change the course of our lives forever.

I am not sure why I have chosen now to share this story – maybe I was just not ready to open that door publicly inviting in streams of unwanted advice, ignorance and pity. We had slightly, posting something on social shortly after her diagnosis, but I quickly shut it again realizing it was a bad idea at the time. Being someone who strives for excellence in all I do, I was scared that people would see Mia’s birth as a failure. I know, it’s a pretty selfish thought. I had to come to the realization and ask myself who really defines excellence and success anyways? I think we’ve all seen recently that what matters most is our respect and love for others. Do you know who loves harder and cares more deeply than most?

Those with a little extra color in their lives. 

Our kiddos with Trisomy 21 definitely see the world in colors and pure joy. Their perspective on life is brilliant. Now that Mia is older and we have a better idea of what life is going to be like with her, I am more willing to talk about it. We are so proud of who she is becoming and believe she will have a very successful life.  We pray everyday that God places people in her path to ensure that success and so far he has! Although I am still learning, I do feel I can speak to a lot more than I could four years ago.

I have never written down or shared in writing any of my birth stories although I have thought about it many times. I have had three very different births. If I could take parts of all and put into one, it would be the perfect birth story, but of course, life doesn’t work that way.

September 25, 2016 was a day we will never forget. Yes, I know, who would ever forget the birth of their child?! It just sounds dramatic and that’s what I need to describe the events of this day. I have heard people say when someone experiences trauma our memory processing system malfunctions so that the traumatic memory isn’t remembered correctly or stored incorrectly. We may only remember fragments. I remember quite clearly, however.

I decided not to go to church that morning because I was feeling some tightness, but not enough to have Matt stay home. I never enjoyed being pregnant, but especially with Mia. I started having contractions very early with her and had to get them stopped at least twice in the hospital. I was put on bed rest for six weeks and never knew if “this was the day” even though she was my third pregnancy. As the morning went on, I decided to text Matt about the contractions, called my midwives and family. Dad picked up the older kids and mom and my sister came over. I am very close to my family, but they have never been in the room during the actual birth. This time, Matt and I, for some reason, decided to have both my mom and sister present. Later, we understood why we had this prompting from the Holy Spirit. Everyone was there for a purpose and everyone was definitely needed! With Charlee, it was Matt and the hospital staff. With Levi, it was only Matt and one of our midwives. With Mia, we have three midwives, my mom, my sister and then Matt. Everyone was all hands on deck!

Back to the calmness for a minute. Everything before Mia’s birth was perfect. We called everyone over to the house. We set up the tub on the back porch, running the hose through the window. I rested on the couch outside. It was midday by the time I got outside so the sun was in the perfect spot in our backyard. I wasn’t completely in the sun, but in it just enough to feel the warmth. I remember listening to the wind chimes and birds thinking how perfect that day was to have a baby on the back porch! I had prayed for this. When contractions started becoming stronger, I got in the tub.

I remember clearly explaining each stage of labor to Matt and my midwives. I could tell when I hit transition, I could tell when Mia dropped and I could tell the exact moment before my body started to push. It was beautiful how present I was. I started to push, reached down to grab her and she was out within a couple of pushes.

Then everything changed. Have you ever seen a shark bite on tv? When blood hits water it spreads so as to look 10 times worse then it really is! I pulled Mia up to my chest and in a split second the water turned blood red. One of our midwives grabbed Mia, pressed her hand on her belly button and quickly went into action. I had no idea what was going on. Matt was kneeling next to my ear praying and the three midwives were surrounding Mia on the couch. With my adrenaline rushing, I couldn’t process or make sense of anything going on. I just remember thinking, did I push too hard? Did I pull her out too hard? I couldn’t move, just sitting in the tub with Matt holding me tight.

I will continue in my next post, but decided to stop here for today. Don’t worry, Mia is just fine and living a happy, healthy life.

having said this, he spit on the ground, made some mud with saliva, and put it on the man’s eyes. “go,” he told him, “wash in the Pool of Siloam” (this means sent). So the man went and washed, and came home seeing.- John 9:6-7

 


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Reader Interactions

Comments

  1. Char says

    June 26, 2020 at 3:47 pm

    Very lovingly written. Can’t wait for Part II

  2. Dixie says

    June 26, 2020 at 6:15 pm

    Thank you for sharing y’all’s story…Mia! What a beautiful daughter . . . a beautiful soul.

  3. Tracy says

    June 26, 2020 at 7:31 pm

    Can’t wait for the rest!! She is precious !!

  4. Sue Meewes says

    June 27, 2020 at 7:22 am

    Mia is such a precious gift. I love her spirit!

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sheis__kristina

“You tricked me!” — Mia. 😂 Did you know kids with “You tricked me!” — Mia. 😂

Did you know kids with Down syndrome experience the same wide range of emotions as everyone else?

They get excited. They laugh. They get frustrated. They argue with their siblings. They get mad when someone takes their things or walks into their room without asking. They have bad days, big feelings, strong opinions—and yes, they can be VERY determined. 😂

Mia is not always happy and smiling, and she shouldn’t have to be. The idea that people with Down syndrome are always happy is a stereotype that doesn’t tell the whole story.

Mia sticks up for herself often, and she is one strong little girl—as you can see in this video! 💪🏼❤️

She has a voice. She has feelings. She has boundaries. And she is absolutely not afraid to let you know when you've crossed one. 😂

Just like every other kid, Mia is a whole person—with a whole range of emotions. And we love every bit of her. ❤️

Drop a 💪🏼to show Mia your support 💕
#mosaicdownsyndrome #DownSyndrome #siblingrivalry
6 months ago... Y'all, I thought the hardest part 6 months ago...

Y'all, I thought the hardest part of my story would be getting to the beautiful beginning!!! Beginning of another season! Another long hard journey of waiting! 

I was wrong.

The beautiful beginning was only the beginning.

Then came the middle.

The part no one prepares you for. The heartbreak. The disappointment. The questions I never imagined asking God. The moments when I wondered if I had made a terrible mistake. The moments when I had to face the ugly parts of adoption—and the ugly parts of myself.

I had asked God to grow my faith. I had asked for hard things!! I had did this! 

I just didn't realize He would answer by taking me somewhere I couldn't carry myself out of.

For seven years, God would slowly break me wide open… not to destroy me, but to redeem me.

And seven years later, I'm still becoming.

I'm working on my health. My weight. My mindset. My faith. I'm learning that healing doesn't always happen all at once, and becoming who God created us to be is a lifelong journey.

Maybe that's the greatest lesson of all:

God is never done with us.

The story doesn't end when we walk through the breaking. Sometimes, that's where the real becoming begins.

My story isn't simply about adoption. It's about motherhood, disappointment, faith, surrender, and learning that I was never meant to be anyone's Savior.

Y'all! I'm writing the story I never expected to live.

And maybe, somewhere in these pages, you'll find a piece of your own story, too!

Still Walking With Him (title still up for grabs 😂😂)
A Journey Through Disappointment, Adoption, Motherhood, and the Unexpected Grace of God

Seven years later, I'm still walking.
Still healing.
Still becoming.
Still walking with Him. 🤍

This was 6 months ago...22 lbs ago. I'm still living 💕 are you?! #adoption #motherhood #mom
Did you know that siblings of children with specia Did you know that siblings of children with special needs often develop exceptional empathy and understanding?

Watching my children interact with Mia through love and support reminds me that while this journey isn't always easy, it shapes hearts in beautiful ways. 💕

One reason is that they are exposed to differences from an early age in a very personal way. While every sibling's experience is unique, many siblings of children with special needs often:

✨Learn that everyone has different strengths and challenges.

✨Develop patience by adapting to situations that may require extra time, flexibility, or understanding.

✨Become strong advocates after seeing their sibling navigate barriers or misunderstandings.

✨Gain perspective by recognizing that not everyone's journey looks the same.

✨Learn inclusion naturally because differences are part of their everyday life.

Research has found that many siblings of individuals with disabilities report higher levels of empathy, compassion, and social awareness. Of course, they may also face challenges, such as taking on extra responsibilities or feeling overlooked at times, but their experiences can foster a deep appreciation for acceptance and human connection.

#downsyndrome #SiblingLove #mosaicdownsyndrome #SpecialNeedsMom
Thank you @catherinelagaaia @disneystudios and @th Thank you @catherinelagaaia @disneystudios and @therock for making my girl sing at the top of her lungs in the theater! The only time she doesn't have her stutter is when she is singing. This is her love language!! So thank you!! 

And thank you Charlee and friends for letting us tag along!! 

Ps movie is covered bc I didn't want to get in trouble 😵‍💫 🤣

#mosaicdownsyndrome #downsyndromeawareness #moanaliveaction
Where are my 1986 friends? 🙋🏼‍♀️ How are we 40 al Where are my 1986 friends? 🙋🏼‍♀️

How are we 40 already?

We're in this strange season where we don't feel old, but we definitely don't feel young either. Many of us are raising little kids or teenagers while also beginning to care for our aging parents. We're juggling careers, marriages, friendships, dreams, and wondering, What stage of life is this?

I thought by now I'd feel settled. Confident. Like I had everything figured out.

Instead, I find myself in another season of transition.

For a while I wondered if maybe my creative years were behind me. But I've realized something...

They're not.

And neither are yours, friends! 

Turning 40 doesn't mean our best ideas are behind us. It doesn't mean God is finished writing our story. 

So here's to our most creative, productive, purpose-filled, and life-changing years yet 🙌🏼💕

I'm excited to finally share that after writing my children's book, I'm now working on something much more personal—a full-length memoir. It's a story of faith, motherhood, adoption, disappointment, hope, and the unexpected ways God meets us in the middle of it all.

I can't wait to share more of this journey with you. ❤️

If you're a fellow 1986 baby, tell me... what has turning 40 taught you? 👇🏼👇🏼
#40 #1986 #mom
Our dad and Papa had several mini strokes this wee Our dad and Papa had several mini strokes this weekend in the left side of his brain - the side that controls his expressive communication. He's all still there and still his goofy self 😂😂 but he can't communicate and speak properly yet. Join us in praying for him so we can get him back in body surfing shape😜🙏🏼🙏🏼 

*Drop a prayer emoji below and I'll tell him you sent up a prayer for him!*

Thank you 🙌🏼💞
My girlies. 🤍 I can’t believe my oldest biologica My girlies. 🤍

I can’t believe my oldest biological daughter is about to pass me up in height. Thanks, Dad, for the genes! 😂

This beach trip was full of laughter, memories, and moments I never want to forget. But if I’m honest, there is also a quiet space in my heart.

Because when you have six children, your heart doesn’t simply adjust when some are no longer beside you. You still count them. You still carry them.

One of my daughters isn’t in this picture, but she is still part of our story. She is still my daughter despite another family caring for her. Despite the heartache and separation. Despite the void between us. 

Motherhood doesn’t disappear with distance. The effort and pain is real. 

So today I’m soaking in these moments with the girls beside me, while also carrying the one who isn’t here. Both can be true. 🤍
Go Mia go!! #mosaicdownsyndrome #downsyndromeawa Go Mia go!! 

#mosaicdownsyndrome #downsyndromeawareness
One thing many people don’t realize is that some c One thing many people don’t realize is that some children with Down syndrome may process risk, danger, and safety awareness differently. It doesn’t mean they don’t feel fear—it can mean that recognizing danger, understanding consequences, or knowing when to pause may take more time, teaching, and repetition.

For a while, we wondered about Mia.

She would run toward the street, talk to strangers without hesitation, and we weren’t always sure she understood the risks around her.

But watching her now…

She can hear the fireworks, recognize that something feels uncomfortable, and make a choice to move away.

She can still laugh.
She can still play.
She can still experience joy.

Healthy fear isn’t about being afraid of the world. It’s about having the awareness to navigate it safely.

To some, this may look like a simple moment. To us, it’s a milestone we prayed for.

Mia, keep growing, keep exploring, and keep showing us that every child’s journey unfolds in its own beautiful way. ❤️
#downsyndromeawareness #mosaicdownsyndrome
Beautiful week at the beach!!💕 More pictures to co Beautiful week at the beach!!💕 More pictures to come of everyone. But this needed a permanent place on my feed! One of my favorites! Never would I have asked him to lift me 3 months ago. I was the heaviest I've ever been! I wasn't even that much pregnant with any of my 3 birth kiddos! I still have work to do, but I'm headed in the right direction with a loss of 22 lbs. Thank you @mptubinis for sticking with me through all the highs and lows! Love you 😘🙌🏼💞
#weightlossjourney
In case you needed a reminder today... #downsyndr In case you needed a reminder today...

#downsyndromeawareness #bebrave #mosaicdownsyndrome
Y'all how are these "swings" allowed so high up in Y'all how are these "swings" allowed so high up in the air?!😂😂 I was clinging to Mia as she kept saying, "I love heights!" I was having a panic attack 🤦🏼‍♀️🙄

I am wearing a @katiekalsi_handbags hand-painted Collierville handbag strap and a @kendrascott Coat of Many Colors Necklace 💕

#gatlinburgskylift #downsyndrome #mosaicdownsyndrome
Navigating education in the Memphis area can be in Navigating education in the Memphis area can be incredibly complicated. Our home is incorporated and designated as part of the city school system, even though we live in what feels like a rural community. Over the years, the surrounding suburbs created their own municipal school districts, leaving families like ours caught between systems.

For years, our family received transfers into our closest municipal school district. Four of Mia's older siblings attended those schools. Yet when it came time for Mia, she was denied every year. 

As a parent, that was difficult to understand. It felt unfair and discouraging. But I've learned that sometimes the plans we work so hard for aren't the plans God has for us.

What felt like a setback turned out to be a blessing.

This fall, Mia will begin attending @@madonna_learning_center school uniquely equipped to support her learning style, celebrate her abilities, and help her thrive.

I don't know exactly what this next chapter will look like, but I do know this: God often opens doors we never would have chosen ourselves, and those doors can lead to something far better than we imagined.

We're excited for Mia's future and grateful for the journey that brought us here. ❤️

#MiaStrong #DownSyndromeAwareness #SpecialNeedsParenting #FaithOverFear #MadonnaLearningAcademy
So true words!! Thank you @ourhuddybuddy for being So true words!! Thank you @ourhuddybuddy for being bold and "letting me" copy your inspo 🤣 but for real! Our kiddos are the best! 
#DownSyndrome #downsyndromeawareness #mosaicdownsyndrome
Look who is getting a new school in the fall!!!💕🙌🏼 Look who is getting a new school in the fall!!!💕🙌🏼🙏🏼 @madonna_learning_center
Have you ever been told your child wasn't human?! Have you ever been told your child wasn't human?! I have. 

*Save, repost or share this so Instagram continues the awareness.*

Yes, I know a ridiculous response to a living, breathing being. Whether a "troll account" or AI someone at one point thought this. I, against better judgement, engaged with this account and they responded, "they are not human and don't contribute anything to society." 

But My daughter has Down syndrome. She is fully human and she has a place in society—just like anyone else.

Down syndrome is one of the most extensively studied genetic conditions in medicine. Research involving individuals with Down syndrome has contributed to major advances in genetics, developmental science, congenital heart disease treatment, immune system research, and Alzheimer’s disease (due to genes located on chromosome 21). Their participation in studies has helped expand understanding that benefits medicine far beyond one diagnosis.

But beyond research, her place in this world is not defined by what she can “produce.” It’s defined by belonging.

She is a daughter, a friend, a learner, and a part of her community. She contributes in ways that matter—through presence, connection, love, and the way she experiences and shapes the world around her.

A society isn’t measured by how it ranks people. It’s measured by whether it makes room for all people.

And she belongs here. My Mia! 

#downsyndromeawareness #mosaicdownsyndrome #downsyndrome
Amazing weekend in Gatlinburg for the Southeast Sh Amazing weekend in Gatlinburg for the Southeast Shootout Lacrosse Tournament 🥍🥍 our girls went undefeated until the championship game where we landed second after a heated game losing 6 to 7. The rain hit us hard in the first half. I am so proud of these girls!!! They all did so amazing and Charlee scored a TOTAL OF 13 GOALS!! One for the books💞💪🏼
An amazing weekend in Gatlinburg for the Southeast An amazing weekend in Gatlinburg for the Southeast Shootout 2026 Lacrosse Tournament 🥍 ...pics to come of game time!!! Here are pictures from our leisure time! 💞 We are so proud of you Charlee and how hard you work and play!
To those saying, "Down syndrome comes with health To those saying, "Down syndrome comes with health problems"—

So does being human.

1 in 6 people worldwide lives with a disability. 

More than 2.2 billion people have a vision impairment. 

More than 1.5 billion people live with hearing loss. 

Cardiovascular disease accounts for about 1 in 3 deaths globally. 

Millions of children are diagnosed with developmental, intellectual, or learning disabilities. 

A baby with Down syndrome may have an increased likelihood of certain medical conditions, but no baby is guaranteed a life free of illness, disability, or hardship.

Every child deserves the chance to live, love, learn, and be loved. A diagnosis does not determine a person's worth. ❤️

#notaglitch #downsyndromeawareness #mosaicdownsyndrome
#notaglitch #DownSyndromeAwareness #notaglitch #DownSyndromeAwareness
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