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To My Sisters: Faith and Family

Who Am I?

When you hear a new song, do you like it because of the lyrics or the melody? I don’t know much about music — Matt does, not me. When I was in middle school, I played the viola. I wanted to be like my sister, but not “be” like her. All you with an older sister, you know what I mean! She played the violin so I picked the bigger and more unique instrument, the viola. It probably only lasted that school year, I don’t even remember. All that to say, I played an instrument (if you can call it that) and I was in my church choir, but that is as far as my musical training goes. What usually catches me right away is the melody, not the lyrics. Sometimes I am listening to a song, jamming out and then the next time I really listen to it, I’m appalled! Good thing my kids weren’t in the car.

I love listening to these two songs: She Used to Be Mine and Who You Say I Am…BUT I have two completely different emotions when I am listening to them. It is crazy how powerful a song can speak to us, but also how much they can alter our mood. Be very mindful of this.

Y’all I love (LOVE!) I’m Gonna Be. I remember being a little girl and every time it came on the radio a huge giddy, smile would cross my face! Why?! Seriously, why would a 6-7 year old love this song so much…

When I wake up, well I know I’m gonna be,
I’m gonna be the man who wakes up next you
When I go out, yeah I know I’m gonna be
I’m gonna be the man who goes along with you
If I get drunk, well I know I’m gonna be
I’m gonna be the man who gets drunk next to you

Parents, come on! What are you teaching me about my future Mr. Right?! It was released by The Proclaimers in 1987. I guess my parents played it all the time when I was one! To this day, if I hear this song, I am brought back to the sunny streets of Florida lined with palm trees and the warm breeze across my face!

Sara Bareilles’s song, She Used to Mine, evokes longing and sadness in me.

It’s not simple to say
That most days I don’t recognize me
That these shoes and this apron
That place and its patrons
Have taken more than I gave them
It’s not easy to know
I’m not anything like I used be, although it’s true
I was never attention’s sweet center
I still remember that girl

I have never seen Waitress, but would love to eventually when this world starts to open back up. BUT…I love this song! I came across the lyrics before I actually listened to it so this song is out of the norm of favorites for me. The words just pierced right through me then I read Sara Bareilles’s explanation of it and died!

Who am I? I am a mom of six – a mom to three brown kiddos, one child with Mosaic Down syndrome and two stuck in the middle. Most days I can’t even remember what I ate for breakfast or if I even ate breakfast. I clean up messes all day long. My life is not my own, “She is gone, but she used to be mine.” It is very easy to fall into this trap of loneliness and despair. How can I be lonely with 7 other people around me, 10 cats, 1 dog, frogs, snakes, turtles and who knows what else?! I seriously was woken up the other night at 2am because Charlee found Ashley’s lost snake in the hallway on her way to the bathroom. I am not alone, but many times I feel lonely.

What did I do before 6 kids? What did I enjoy? What did I do with ALL.THAT.TIME! I have no idea. I was a socially active person. I was president of my college public relations society. I was a published writer at the University of Memphis. I was a full-time working professional. I visited over 15 countries before 30! I was going places.

“I think everybody can relate to the idea that no matter where you ended up, you ended up different than you thought you would be,” explains Bareilles. “We all have to reconcile the differences with who you thought you would become, and who you actually ended up to be.”

Moms, how many of you get stuck in the “what if”? What if I would have pursued that career and not had children? What if I didn’t get married so young? It is a deep hole to get into. Believe me, I have been there. That is what this beautiful song does to me – produces a very not beautiful picture of Who I Am.

Now Hillsong’s Who You Say I Am evokes meaning, belonging and love. A stark contrast of Who I Am from above.

Who am I that the highest King
Would welcome me?
I was lost but He brought me in
Oh His love for me
Oh His love for me…
I’m a child of God
Yes I am
I am chosen. Not forsaken. I am who You say I am! EXACTLY! I am a mother of 6! I am a mom of six beautiful children three of whom are brown kiddos and one special needs kiddo – all that will bring more than I know I can handle on my own. BUT I was chosen for this path and I will walk down it with blind eyes, exhaustion and greasy hair! Who’s with me?! Ha!
She’s imperfect, but she tries
She is good, but she lies
She is hard on herself
She is broken and won’t ask for help
She is messy, but she’s kind
She is lonely most of the time
She is all of this mixed up and baked in a beautiful pie
Own it, ladies! But give it over to the one who can handle it!
Love you, all!
~ Kristina


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Reader Interactions

Comments

  1. Cathy says

    July 2, 2020 at 6:39 am

    Kristina, you have been given a gift of words, of writing and making a difference for people to see God working through your life touching those beautiful children. I didn’t have six children but I had 4 within 5 1/2 years so I know your hectic life. As a stay at home mom I can’t tell you the difference it will make for your children, you just have to wait till they are adults to reap all the blessings. When you feel like pulling your hair out, stop take a breath and enjoy the moment because it all goes so very fast and you will long for those crazy days again. You are in my prayers as your journey continues. I’m blessed by your readiness to serve and love our God!

    • Kristina says

      July 2, 2020 at 9:12 am

      Thank you so much for your encouragement!!

  2. Celeste says

    July 2, 2020 at 9:40 am

    Well this one certainly hit home for me! Thank you for the reminder that while I’m not perfect, I am loved by God and I’m right where I’m supposed to be.

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sheis__kristina

Navigating education in the Memphis area can be in Navigating education in the Memphis area can be incredibly complicated. Our home is incorporated and designated as part of the city school system, even though we live in what feels like a rural community. Over the years, the surrounding suburbs created their own municipal school districts, leaving families like ours caught between systems.

For years, our family received transfers into our closest municipal school district. Four of Mia's older siblings attended those schools. Yet when it came time for Mia, she was denied every year. 

As a parent, that was difficult to understand. It felt unfair and discouraging. But I've learned that sometimes the plans we work so hard for aren't the plans God has for us.

What felt like a setback turned out to be a blessing.

This fall, Mia will begin attending @madonna_learning_center school uniquely equipped to support her learning style, celebrate her abilities, and help her thrive.

I don't know exactly what this next chapter will look like, but I do know this: God often opens doors we never would have chosen ourselves, and those doors can lead to something far better than we imagined.

We're excited for Mia's future and grateful for the journey that brought us here. ❤️

#MiaStrong #DownSyndromeAwareness #SpecialNeedsParenting #FaithOverFear #MadonnaLearningAcademy
So true words!! Thank you @ourhuddybuddy for being So true words!! Thank you @ourhuddybuddy for being bold and "letting me" copy your inspo 🤣 but for real! Our kiddos are the best! 
#DownSyndrome #downsyndromeawareness #mosaicdownsyndrome
Look who is getting a new school in the fall!!!💕🙌🏼 Look who is getting a new school in the fall!!!💕🙌🏼🙏🏼 @madonna_learning_center
Have you ever been told your child wasn't human?! Have you ever been told your child wasn't human?! I have. 

*Save, repost or share this so Instagram continues the awareness.*

Yes, I know a ridiculous response to a living, breathing being. Whether a "troll account" or AI someone at one point thought this. I, against better judgement, engaged with this account and they responded, "they are not human and don't contribute anything to society." 

But My daughter has Down syndrome. She is fully human and she has a place in society—just like anyone else.

Down syndrome is one of the most extensively studied genetic conditions in medicine. Research involving individuals with Down syndrome has contributed to major advances in genetics, developmental science, congenital heart disease treatment, immune system research, and Alzheimer’s disease (due to genes located on chromosome 21). Their participation in studies has helped expand understanding that benefits medicine far beyond one diagnosis.

But beyond research, her place in this world is not defined by what she can “produce.” It’s defined by belonging.

She is a daughter, a friend, a learner, and a part of her community. She contributes in ways that matter—through presence, connection, love, and the way she experiences and shapes the world around her.

A society isn’t measured by how it ranks people. It’s measured by whether it makes room for all people.

And she belongs here. My Mia! 

#downsyndromeawareness #mosaicdownsyndrome #downsyndrome
Amazing weekend in Gatlinburg for the Southeast Sh Amazing weekend in Gatlinburg for the Southeast Shootout Lacrosse Tournament 🥍🥍 our girls went undefeated until the championship game where we landed second after a heated game losing 6 to 7. The rain hit us hard in the first half. I am so proud of these girls!!! They all did so amazing and Charlee scored a TOTAL OF 13 GOALS!! One for the books💞💪🏼
An amazing weekend in Gatlinburg for the Southeast An amazing weekend in Gatlinburg for the Southeast Shootout 2026 Lacrosse Tournament 🥍 ...pics to come of game time!!! Here are pictures from our leisure time! 💞 We are so proud of you Charlee and how hard you work and play!
To those saying, "Down syndrome comes with health To those saying, "Down syndrome comes with health problems"—

So does being human.

1 in 6 people worldwide lives with a disability. 

More than 2.2 billion people have a vision impairment. 

More than 1.5 billion people live with hearing loss. 

Cardiovascular disease accounts for about 1 in 3 deaths globally. 

Millions of children are diagnosed with developmental, intellectual, or learning disabilities. 

A baby with Down syndrome may have an increased likelihood of certain medical conditions, but no baby is guaranteed a life free of illness, disability, or hardship.

Every child deserves the chance to live, love, learn, and be loved. A diagnosis does not determine a person's worth. ❤️

#notaglitch #downsyndromeawareness #mosaicdownsyndrome
#notaglitch #DownSyndromeAwareness #notaglitch #DownSyndromeAwareness
Having a child is not choosing to have a "perfect" Having a child is not choosing to have a "perfect" child. You can't try and try again until you get a "perfect" child. Are you perfect? Do you wear glasses? Have you had braces? Did you need ear tube surgery as a child? What about being small-chested? Or too short? Or whatever else we were bullied for? Yeah, none of us are perfect!

And honestly, I feel sorry for them. They'll never experience the smiles, hugs, and unconditional love a child like my daughter can provide. She deserves life, she deserves a chance, and she brings more joy to this world than they could ever imagine. 💞

#DownSyndromeAwareness #mosaicdownsyndrome #DownSyndrome
Can you believe a man called someone like my daugh Can you believe a man called someone like my daughter a "glitch"? 😭 I can't.

#DownSyndrome #DownSyndromeAwareness #notaglitch
I am still speechless over the news of a very infl I am still speechless over the news of a very influential couple not understanding the devastation their actions, shared across such a large platform, can cause to a community that has worked so hard to combat ignorance and misinformation.

But this much I know for certain:

My Mia, you are not a mistake. 💞

You are loved. You are valued. You are worthy.

You deserve life. You deserve to be given a chance.

Every child will face hardships in life. Some challenges are visible, and some are not. No life comes with guarantees, and no child is promised an easy path. But hardships do not determine a person's worth, they only make us stronger than 💪🏼.

Your life has purpose, meaning, and immeasurable value. The joy you bring, the love you share, and the lives you touch matter more than words can express.

To every individual with Down syndrome and every family who loves them: your lives are valuable, your voices matter, and your stories deserve to be told.

Every child deserves a chance. Every life has value. And every person deserves to be loved and celebrated for exactly who they are. 💙💛

#DownSyndromeAwareness #mosaicdownsyndrome #spreadlove
16 years ago we saw him at the Kokua Festival in H 16 years ago we saw him at the Kokua Festival in Hawaii. Today on our home turf @overtonparkshell we saw @jakeshimabukuro again along with some of our kiddos! Luckily @mptubinis and I still fit into our shirts from 2010 😅😜✨
Date night 💞✨ @overtonparkshell with @eastnashgras Date night 💞✨ @overtonparkshell with @eastnashgrass
Happy #GlobalRunningDay, friends! Month 3 of consi Happy #GlobalRunningDay, friends! Month 3 of consistent running again 💪🏼
What a beautiful night 💞@germantowncharity What a beautiful night 💞@germantowncharity
Did you know that siblings of children with specia Did you know that siblings of children with special needs often develop exceptional empathy and understanding? (Also✨bonus question at the end!)

Watching my children (and their friends ) interact with Mia through love and support reminds me that while this journey isn't always easy, it shapes hearts in beautiful ways. 💙

One reason is that they are exposed to differences from an early age in a very personal way. While every sibling's experience is unique, many siblings of children with special needs often:

💙 Learn that everyone has different strengths and challenges.

💙 Develop patience by adapting to situations that may require extra time, flexibility, or understanding.

💙 Become strong advocates after seeing their sibling navigate barriers or misunderstandings.

💙 Gain perspective by recognizing that not everyone's journey looks the same.

💙 Learn inclusion naturally because differences are part of their everyday life.

Research has found that many siblings of individuals with disabilities report higher levels of empathy, compassion, and social awareness. Of course, they may also face challenges, such as taking on extra responsibilities or feeling overlooked at times, but their experiences can foster a deep appreciation for acceptance and human connection.

BONUS QUESTION: What book am I reading?👇🏼

#SpecialNeedsFamily #SiblingLove #DownSyndromeAwareness #SpecialNeedsMom
He did not win 🤣💪🏼@mptubinis He did not win 🤣💪🏼@mptubinis
Do you know what it feels like to be a wife, mom o Do you know what it feels like to be a wife, mom of 6, special needs mom, and work-from-home mom? It feels like I am always forgetting something, always disappointing someone, always overwhelmed by the endless list of things to do.

Once upon a time, a boss called me the most productive person on the team. Now I feel like I’m completing nothing, handling nothing well, and dropping the ball everywhere. I got to the point where I was only dealing with the most pressing issue right in front of me — not looking too far ahead and not prioritizing anything. Basically just surviving long enough to get to the next thing done.

I’ve realized I have to pull myself out of this. Not because everything will suddenly get easier, but because living in constant survival mode is exhausting. So here is the list I’ve made for myself. 🤍

✨ Pray more, panic less
🤍 Take care of myself like I take care of everyone else
☀️ Accept that some days surviving is still enough
🌿 Move my body… even if it’s just a walk

I can’t pour from an empty cup. One day at a time.
Yes, children with Down syndrome can swim — and ma Yes, children with Down syndrome can swim — and many absolutely thrive in the water. 💙

Swimming builds:
✨ Strength
✨ Confidence
✨ Coordination
✨ Independence
✨ Joy

Every child learns differently, and progress may look different too — but different does not mean impossible! And please don't ever tell Mia she can't be in water!! She is our mermaid 🧜🏼‍♀️

Some of the biggest milestones happen one small splash at a time. 🫶

To the parents showing up for therapies, lessons, encouragement, and every brave first step… keep going. Your kids are capable of amazing things. Let's not limit them because of our limited knowledge of what they can do!! 

#DownSyndromeAwareness #DownSyndrome #NothingDownAboutIt #SpecialNeedsParenting #mosaicdownsyndrome
These last 6 years have stretched me in every way These last 6 years have stretched me in every way — physically, mentally, and emotionally. I’m not always sure why God chose for our path to feel so uncertain and fluid, but here we are.

I went from being a marathon runner to a mom navigating a world I knew nothing about, carrying the weight of stress, exhaustion, and over 30 extra pounds. Somewhere along the way, I lost parts of myself trying to survive it all.

But slowly, little by little, I’m finding her again. 💕

I’ve lost 17 pounds and have been running consistently again for the last 2 months. It feels so good to feel strong again — not just physically, but mentally too. And yes, I know how quickly life can change. I know progress can feel fragile when life throws giant curveballs.

But today I’m choosing gratitude. I’m still here. Still trying. Still growing. Still running.

Friends, life is hard. It humbles all of us at some point. But don’t forget — if you’re still living, there’s still purpose ahead of you. Are you living too? ⬇️ Tell me how!! Please?

Also shout out to @katiekalsi_handbags for the amazing handbag and hand-painted strap I'll be wearing for Memorial Day 🇺🇸
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